Places of worship can be important communities for youth with
disabilities and their families. Teenagers who are welcomed into
churches, synagogues or mosques have wonderful opportunities for
socialization, education and recreation. But, as with other aspects of
their lives, these adolescents will need to transition from childhood
to adulthood as they find their own place in a house of worship. The
"children's Sunday School" programs are no longer appropriate and the
adult worship services may not yet be suitable or interesting to them.
Fortunately, many religious communities offer programs that can be
inclusive and welcoming for teens and young adults with special needs.
To find appropriate programs, you and your son or daughter should:
- Visit several places of worship to find the most welcoming and inclusive.
- Discuss opportunities to get involved in the work of
your religious community with your pastor or rabbi, such as greeting
members before services, volunteering with social ministry groups or
participating in the worship service itself.
- Encourage your teenager to be a self-advocate and to seek opportunities him/herself.
- If needed, ask if there are volunteers who can help transport your son or daughter to worship services, meetings or activities.
Some of the benefits of participating in worship services and congregational life include:
- Opportunities to interact with and learn from others - with
and without disabilities - while enhancing social skills, self-esteem,
self-worth and friendships.
- A strong community network that could lead to meaningful volunteer work or successful employment in the community.
- Natural supports for more independent living in the community.
If your congregation is not as inclusive as you'd wish, the following
excerpt may help lay people and clergy open up a discussion and make
positive changes.
An Audit of Barriers: An excerpt from That All May Worship, Seventh Edition
Many people with disabilities have had negative worship experiences
in the House of God. They have met subtle thoughtlessness and outright
rejection. Many have lost the will to worship and they question the
relevance of faith.
When buildings are structurally inaccessible, those with mobility
impairments cannot get in. When the Word is only spoken, those with
hearing problems are denied some or all of the messages. When
announcements are in print form only, those with poor sight miss
opportunities. When general invitations are issued and members with a
mental illness or another chronic illness are not personally invited,
they may assume they are excluded. When leadership appointments are
made and each person selected appears to be physically or mentally
"perfect," the person with a disability may doubt his or her own
usefulness.
For religious/spiritual supports, check out the following resources.
Local programs and resources in the Southeastern PA region are listed
first; more generalized resources follow.
Rejoicing Spirits:Inclusive Worship Services in Bucks, Chester, Philadelphia and Montgomery Counties
Rejoicing Spirits encourages spiritual inclusion for people with intellectual and developmental disabilities, their families, friends and the local community. This is done through inclusive, adapted worship and fellowship time. Services include lots of music and joyous singing along with brief, meaningful messages and opportunities to participate and serve. Its "no shushing" environment gives worshipers the freedom to worship as God intends for them.
To help faith communities get started, a guidebook “How To Start a Rejoicing Spirits Ministry” is available. Through a Rejoicing Spirits ministry, congregations become aware, educated and accepting of individuals with intellectual and developmental disabilities.
For more information, visit www.rejoicingspirits.org or contact program director Susan Crawford 610-363-6264 or scrawford@rejoicingspirits.org
- Peaceful Living:Creating belonging within a faith
community for persons with developmental disabilities. 850 Old Skippack
Pike, PO Box 130, Lederach PA 19450-0130. Peaceful Living is building a
faith-centered advocacy service to help children and adults with
disabilities establish life-long relationships within their faith
community. Peaceful Living is for persons with developmental
disabilities and their families, congregations, caregivers and agencies
providing care. For information, contact Joe Landis, Director at
610-287-1200, or jlandis@peacefulliving.org
- Auerbach Central Agency for Jewish Education, Bux-Mont Synagogue
Contact Deborah Gettes, Consultant for Special Needs Education, at
215-635-8940 x 1231 - Gam Yahad (meaning "All Together"),
a program of Jewish Family & Childrens' Services, celebrates
holidays and hosts other events for adults with developmental
disabilities, their families and friends. For more information about
Gam Yahad and upcoming events, please call 215-673-0100 or go to www.JFCSphilly.org.
- SIMCHA (Special Individuals Meeting Challenges with Heartwarming Activities)offers
support for parents and youth with special needs. 101 Richboro Rd.,
Newton PA. Contact Rabbi Yair Robinson or Debby Chaiken at 215-968-3400.
- That All May Worshipis a Philadelphia's interfaith
network for people committed to building spiritual communities with
people with disAbilities. Mission Statement: We, as an interfaith
network in the Greater Philadelphia area, believe that all people with
and without disAbilities, are spiritual beings and have gifts to share.
Learn more about its Spirituality Resource Center for Persons with
disAbilities in Philadelphia by contacting Jim McIntire, Center for
Spirituality and Disability, j_mcintire@msn.com.
- The National Organization on Disabilityoffers
guidelines for welcoming and including youth and young adults with
developmental disabilities into the life of their congregation.
According to N.O.D., many congregations are not accessible to people
with disabilities and their families. Barriers of architecture,
communications and attitude prevent America's 54 million men, women and
children with disabilities from participating in a full life of faith
namely, worship, study, service or leadership.
- Dimensions of Faith,
a bibliography and address listing of resources for clergy, laypersons,
families, and service providers; divided into areas of congregational
ministry and outreach, e.g. worship, pastoral care, religious
education, awareness videos, with sections on respite care, community
building, person-centered planning, coping with grief, and more from
the Elizabeth M. Boggs Center on Developmental Disabilities of the
Robert Wood Johnson Medical School. 2005, 176 pages, $15.
- Checklist of Easy Accommodations:For congregations and other resources, go to the University of Maryland, Community Connections/ Spiritual Leaders section at www.communityconnections.umd.edu and click on "spiritual leaders" in the left column.
- Inclusion:Congregations can take specific steps to
reach out to people with disabilities and their families and improve a
congregation's capacity to welcome them. Read excerpts from "Including
People with Disabilities in Faith Communities: A Guide for Service
Providers, Families, and Congregations," by Dr. Erik W. Carter (Brookes
Publishing, April 2007) at Brookes Publishing.
- Family Village Worship Centerincludes religious/faith/spiritual resources for those who have disabilities.
- National Catholic Partnership on Disabilityworks
to ensure that the 14 million Catholics who are disabled are able to
participate in the celebrations and obligations of their faith and
advocates for their inclusion within the total fabric of society.
- National Jewish Council for the Disabledis
dedicated to addressing the needs of all individuals with disabilities
within the Jewish community. NJCD strives to enhance the life
opportunities of people with special needs and to insure their
participation in the full spectrum of Jewish life.
- The Religion and Spirituality Division of the American Association of Mental Retardation (AAMR)works to foster opportunities for spiritual growth for person with disabilities.